lirazel: Lix Storm from The Hour works on film ([tv] got no bloody film)
lirazel ([personal profile] lirazel) wrote2023-03-07 11:48 am

on health security

I was talking with [personal profile] dollsome  yesterday about mask-wearing and general Covid anxiety, and I want to expand that conversation because I'm interested in other people's povs.

I see people (mostly my online friends tbh--I have not heard anyone say this in real life, which could just be reflective of the fact that I live in a red state or it could be that I have not signaled that I am open to hearing these things) asking, "Why is everyone acting like the pandemic is over? Why aren't they wearing masks? Why aren't they scared?"

And I think this raises an important distinction between perspectives on this topic, and I want to explore it from my own perspective.

I still wear masks in indoor public places. I put one on when I go to the grocery store, when I went to a play last month, and definitely always when I'm in an airport or plane.

But I really don't do that because I personally feel anxiety about catching Covid. I wear masks because I have seen so many immune-compromised people online essentially begging people to do so. They are still so scared and they feel like no one cares about them. And I want to make sure they live in a safer world and also I want them to know that I care about them. That is why I still wear masks.*

But if I wasn't hearing those voices? I would not be wearing one.

Because I don't feel the anxiety. I know intellectually that the pandemic is ongoing. But it feels over for me. Maybe this is just my own foolishness and immaturity. But I think it's actually because I'm not used to my safety being on the line.

I have had a myriad of tiny-to-medium-sized health concerns in my life (everything from stitches to IBS to clinical depression). I've known physical pain and discomfort and I've sure as hell known mental pain and discomfort. But never once has my life been on the line. When I worry about health concerns, I worry about pain, about it getting worse, etc. But I have never once felt the kind of existential fear that someone whose life is in jeopardy feels. I don't worry about dying.+ Nor have I felt the kind of everyday knowledge that people with chronic pain carry around where every action is freighted with consequences for the future (of the "If I do this today, I will literally not be able to get out of bed tomorrow" variety). I just don't have those experiences.

And I think most people don't. Most of us go through life taking our health more or less for granted. Now, this comes from a place of enormous privilege, I know that. Privilege that could disappear for anyone in seconds and without warning. But while you're operating within that privilege, I think it's really hard to make yourself feel the danger that a subset of the population feels daily.

I don't feel it. But I interact online with people who do feel it, and I care about them, and so I realize that my perspective is skewed. So I choose to wear a mask.

But if I weren't interacting with those people? Or if I was, but they weren't saying these things because they didn't feel they could trust me? I think I would think people who are still wearing masks who aren't immuno-compromised themselves are being alarmist and I would roll my eyes at them.

And I think that's where the majority of people are at. I think that is one of the two big reasons people (at least in the US) aren't wearing masks anymore and are acting like the pandemic is over. (The other is the politicization of the issue, and the ugly defiance that a lot of right-wing people feel about the whole topic. But left-wing people aren't wearing masks either, so it's clearly not the only factor.)

And I have to admit, there is a part of me that grumbles when I put on my mask. "What, am I going to have to do this forever? Do we all just have to do this for the rest of humanity's existence because of the people who are immuno-compromised?"

Which I realize is an ugly reaction. I'm actively fighting it. I still decide to put on the mask. But if even I, who am constantly reminded that people still want us to wear masks, still feel this way, it doesn't surprise me that other people might be even more careless or callous about the issue.



*There are exceptions to this. I think I will always wear masks for the rest of my life on planes/in airports/in public transit, because it's just so easy to catch any kind of contagion there. And I will also wear them when I personally have a cold or something that makes me all sneezy and gross, just because I don't want to give it to someone else!

+Unless I'm catastrophizing, but that's a different thing related to my anxiety/depression.
dollsome: (Default)

[personal profile] dollsome 2023-03-07 06:28 pm (UTC)(link)
We’ve already talked about this, but I’m looking forward to reading other responses! It’s such a weird time, and a time where I feel like I wish I understood other people better.

I’ve been thinking about this since we were talking about it yesterday — The number one thing that keeps me really wary of catching COVID again myself is that I have asthma, I know how it feels to not be able to breathe, and I really want to avoid anything that could cause even more respiratory damage than I’ve already got (which, my lungs aren’t in great shape anyway due to a lifetime of allergic asthma, whoOoOo!).

I realized yesterday that I can’t really identify with a baseline feeling of health-related “I’m not gonna die from this” safety, so it’s so interesting to be reminded that other people actually do feel that! It made me realize I have been automatically putting my default perspective on other people in that regard and assuming we all felt the same about it. 😂
fleurviolette: (this is fine)

[personal profile] fleurviolette 2023-03-07 09:34 pm (UTC)(link)
It’s all the matter of perspective. I think the issue lies within people mainly thinking about themselves and their loved ones at best. They don’t think about people outside of their bubble. Even if they’re healthy and get sick, it’s a matter of inconvenience too. Working remotely or being isolated from people for prolonged periods of time, especially now that things are getting back to the “old normal”.. people are getting restless or impatient to go back.
gryfndor_godess: (Default)

[personal profile] gryfndor_godess 2023-03-07 10:09 pm (UTC)(link)
I'm not immunocompromised, but I still wear a mask in public indoor places and even around most friends if we're indoors and sometimes around family if I know they're not masking and are very socially active (e.g., my brother and his fiancee visiting home from UVA). I don't have current health problems (knock wood), but I had bad asthma when I was little, so the possibility of having a severe reaction to Covid has always been in the back of my mind. I also got the J&J vaccine, and all of the confusion/changing information about its effectiveness compared to the Pfizer and Moderna vaccines kept me very cautious about Covid long past when other vaccinated folks started feeling comfortable.

Rationally, I think I would probably be okay if I caught Covid (my parents, aunt, and brother all recovered without getting Long Covid), but I am really pretty scared of the possibility of developing Long Covid and becoming disabled in some form. I think a lot of that fear has to do with the fact that I'm single, don't live near my siblings, and wouldn't want to become dependent on my parents.

Like you, I'm probably more aware than most about the immunocompromised community and how masking protects them. Early in the pandemic I virtually dated an immunocompromised woman (and am still friends with her). Knowing her definitely impacted my outlook on the pandemic as a public health emergency, but I'm a very paranoid, worry-prone person in general, so I think I'd continue being cautious even without that relationship. I've always been a pessimist who tends to assume the worst, so for me, assuming that catching Covid would translate into Long Covid is really par for the course.
sophia_sol: photo of a 19th century ivory carving of a fat bird (Default)

[personal profile] sophia_sol 2023-03-07 10:46 pm (UTC)(link)
This is a fascinating look into a very different mindset than mine, thanks for sharing!

I am one of the most covid-cautious people I know. But it's not because I'm anxious, or because immunocompromised people have asked for it, though both of those things are true. It's because I know what kind of post-covid ongoing health effects can be, and I've weighed the risk-reward ratio. I've read about various studies into post-covid long term effects. And I personally know irl two people in my age bracket who became significantly disabled due to post-covid symptoms. I know many more people who aren't disabled, but have noticeable ongoing effects for months or years after a covid infection. I am not interested in risking my long-term health and well-being, or that of the people around me. And wearing a mask is a bit of an inconvenience but it is worth it to me to lower that risk. Plus I have not had a single illness in the last three years, when previously I reliably got two colds every winter, and it's real nice to not be regularly sick!

On the other hand, what I think actually needs to happen is a major push to improve air movement and ventilation in public buildings, so that masks are less necessary for preventing transmission! Masks are great but putting the entire onus of public health on individual choices instead of systemic changes is not an effective long term strategy. A friend of mine who studies emergency management has been a really great resource for me in developing my perspective on this, and it saddens me to see how little this aspect is talked about elsewhere.
belecrivain: (Default)

[personal profile] belecrivain 2023-03-07 11:35 pm (UTC)(link)
I've been basically mask-free for about a year and a half now, and thinking about it, my experience has been very different from yours and that of others here: I know zero people who have had long-term effects, and I'm not in continuous contact with anyone who's immunocompromised and begging people to continue wearing masks. (I have one friend I haven't seen in a while who's immunocompromised, and another who's been cautious but is now willing to meet us in public spaces unmasked; hopefully I've made it clear to her that I can mask up for her but I can check again.) Off the top of my head I can name maybe three dozen people who've had it, and maybe one has had long-term effects, and even then I'm really not sure. (That group includes my 74-year-old father, who got it last winter and seems fine now.) Whereas the people I know who are still masking and/or avoiding gatherings are not, to my knowledge, more at risk than the norm. Maybe I'm just living in a culture where people are less willing to talk about long-term health effects?
sophia_sol: photo of a 19th century ivory carving of a fat bird (Default)

[personal profile] sophia_sol 2023-03-08 01:33 am (UTC)(link)
Whereas if I knew anyone personally under the age of 70 who had really suffered, probably the reality of it would feel more pressing. Does that make sense?

Yeah, that absolutely makes sense, I think it's a very common thing to not feel personal investment in an idea unless it affects one's own circle. Though I think for me it's less about the particular people I know who are affected and more that I think in the circles I run in (or the disability activists I follow online maybe?) I have so much more exposure to the idea that long covid is a thing that it feels normalized and real to me that of course covid comes with potential long-term effects, and it is messaging I've been hearing from very early on.
sophia_sol: photo of a 19th century ivory carving of a fat bird (Default)

[personal profile] sophia_sol 2023-03-08 01:41 am (UTC)(link)
yeah absolutely! the messaging that other people are getting is clearly soooooooo different. The number of people talking as if covid is completely over, when in fact it continues to affect people at high rates, is wild to me. But that's what they're hearing! from sources that should be reputable!
sophia_sol: photo of a 19th century ivory carving of a fat bird (Default)

[personal profile] sophia_sol 2023-03-08 01:45 am (UTC)(link)
Yes, fully agreed on all of this!
sophia_sol: photo of a 19th century ivory carving of a fat bird (Default)

[personal profile] sophia_sol 2023-03-08 02:05 am (UTC)(link)
Oh yeah totally, it's soooo easy to end up in a bubble, and maintaining a sense of the personhood of people outside one's bubble is so important. Having spent most of my life as a part of the mennonite world means that I have also not been entirely bubbled into leftist circles, but now that I no longer am a church person I may have to be more intentional about finding other ways to connect with people I strenuously disagree with. Though preferably without spending time with people who will make a problem of the fact that I'm queer.

Recently I was at a workshop where I was talking with someone else and she repeated a right-wing lie in a way that made it clear she fully believed it, but without the right-wing attitude behind it? Which was a fascinating mix I have not met before. (did you know that some people identify as CATS and so there are LITTER BOXES in schools so that kids can have the bathroom experience of their identity!!!! but she was like, well, that's not my thing, but we gotta do what we gotta do to let people be themselves!)
wendelah1: cartoon cat weaaring a mask, text="wear your mask like this" (Masks are the new new normal)

[personal profile] wendelah1 2023-03-08 07:30 pm (UTC)(link)
I'm still wearing a mask in indoor spaces, and only going indoors when it's absolutely necessary. I'm still ordering groceries to be delivered, ordering everything else from Target or Amazon or Chewy. I didn't feel safe before--now that so few people are wearing masks, I feel even less safe. I did go to one in person concert but it was so unusual--very small audience, on stage with the musicians, tickets were free, and I could pick my seat in the very back row so no one was breathing or coughing on me. It was a classical concert so nearly all of the attendees were old and older. Still, there were just a handful of people wearing masks. I gave up my in person grief group because the room was small, crowded and no one wore a mask. I can't imagine ever going to an opera again--the Dorothy Chandler Pavilion has appalling air circulation.

Everyone I know has already had COVID, with the exception of my son. My mother got COVID from a house guest, as did my sister, who was her caregiver. My mother was treated with Paxlovid and appeared to recover--but she was never the same and died a few months later. She was 96 so perhaps it was just her time. My sister developed a face rash while she was recovering which has never completely gone away. Just when she thinks it's finally gone, it recurs. None of the treatments her dermatologist tried have cleared it. I suspect it's an unusual form of long COVID. It doesn't sound that serious but it's quite disfiguring, is causing damage to her skin and to her self-esteem. She feels embarrassed to leave the house.

We don't know all of the long term consequences of COVID infection. We know it crosses the blood-brain barrier. When the bodied of people who have had COVID are autopsied, active COVID virus is still able to be cultured. To see so many people treating this disease like it's no big deal is so depressing to me. The CDC isn't even following the science with their recommendations, and this is under a Democratic administration. God knows what will happen when the Republicans take over again, as they inevitably will. Oh, and the mask mandate in health care facilities is set to expire in California in April. After that, nowhere will be safe for me. Even now, healthcare workers are wearing those worthless paper surgical masks. I'm sticking with my N-95, thank you very much.